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SUMMARY:Future Debates: Sharing your genetic blueprint - who should have a
 ccess? - Dr Ingrid Slade (University of Oxford)\, Professor Jenny Taylor (
 Wellcome Trust Centre for Human Genetics)\, Professor Gil McVean (Universi
 ty of Oxford)\, Carol Moore (Healthwatch Oxford)
DTSTART;VALUE=DATE-TIME:20160615T183000
DTEND;VALUE=DATE-TIME:20160615T200000
UID:https://talks.ox.ac.uk/talks/id/75226bf7-a821-4ce5-82b5-2cff307f02d8/
DESCRIPTION:Welcome to Future Debates\, a series of public events supporte
 d by the British Science Association.\n\nA genome is an entire set of DNA\
 ; all the instructions for making every part of a living thing.  Research 
 into our genomes could improve our understanding of diseases\, cancers and
  passing on certain traits.  The application of this research through geno
 mic medicine is at the cutting edge of science.  There’s large potential
  for the technology to help us create new treatments and preventative appr
 oaches.\n\nSomeone’s genome can explain lots of things about them\, and 
 we don’t yet understand all of what the genetic code means.  Genome data
  is being collected from a group of patients with rare diseases and cancer
 s across the UK\, as part of the Genomics England 100\,000 Genomes Project
 .  This information needs to be collected and stored securely\, interprete
 d by experts and viewed in a way that protects the donor’s identity.  Th
 ere have been discussions among scientists about the implications of genom
 ic medicine for privacy and the NHS\, and the British Science Association 
 believes that it is vital to open that conversation up to the public.\n\nC
 ome and join our panel of scientists and other experts to discuss who shou
 ld have access to this data.  Should genomic data be used outside medicine
 ?  Should private companies share any profits they make from genomic data 
 with participants?  Does the right to privacy outweigh the societal benefi
 t of genomic research?\n\nDoors open from 6.15 pm\, and the debate will ru
 n from 6.30 pm until 8.00 pm.\n\nFuture Debates events are part of the Bri
 tish Science Association's work to make science a fundamental part of Brit
 ish society and culture. We want to empower many more people – not just 
 scientists – to constructively engage in debates over the applications a
 nd implications of science in their lives\, their local economy and the UK
 ’s future.\n\nFollow us on twitter @LivingWellOx @HumanGeneticsOx @BritS
 ciAssoc and use the event hashtag #FutureDebates\n \nCollated\, anonymised
  data from the Future Debates series will be provided to the Chief Medical
  Officer for the purpose of informing policy about Genome Data Privacy. Th
 e event will not be recorded\, nor will any individual be identifiable in 
 any of this information.\nSpeakers:\nDr Ingrid Slade (University of Oxford
 )\, Professor Jenny Taylor (Wellcome Trust Centre for Human Genetics)\, Pr
 ofessor Gil McVean (University of Oxford)\, Carol Moore (Healthwatch Oxfor
 d)
LOCATION:Saïd Business School\, Park End Street OX1 1HP
TZID:Europe/London
URL:https://talks.ox.ac.uk/talks/id/75226bf7-a821-4ce5-82b5-2cff307f02d8/
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DESCRIPTION:Talk:Future Debates: Sharing your genetic blueprint - who shou
 ld have access? - Dr Ingrid Slade (University of Oxford)\, Professor Jenny
  Taylor (Wellcome Trust Centre for Human Genetics)\, Professor Gil McVean 
 (University of Oxford)\, Carol Moore (Healthwatch Oxford)
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