🐎 Think Horses…but don’t forget the Zebras! 🦓

Did you know in the UK, there are as many people who live with a rare condition as those living with cancer (approx 1 in 17 people)? So why are we classically taught to neglect this significant patient population? Though individually uncommon, rare conditions are – paradoxically – collectively common. They can share common challenges and red flags for referral.

ThinkRare! is a new MSD Award-funded seminar series shining a spotlight on Rare Diseases from the inside-out, blending clinical case-based teaching, lived experience from patient partners, alongside interactive anatomy and histopathology.

The first session “Brain and Bone” will focuses on the Musculoskeletal and Neurological systems.

When: Tuesday 9 Dec 2025 1.30 – 5 PM
Where: Conference Room, Academic Centre, Level 3 JR Hospital
Who: This event is aimed at students with an interest in rare disease.
Free food & drink and certificate of participation provided.

Session 1 highlights: – OxRare Committee – Rare 101 – Prof Paul Wordsworth – “X-Linked Hypophosphataemia – A rare cause of mineralisation in the wrong places” – Dr Sithara Ramdas – “Duchenne’s Muscular Dystrophy – Beyond Textbooks and Toddlers” – Patient partners Mr OB / Mr DC with Dr Helen Stewart – “Lived Experiences of Neurofibromatosis Type 1 & Loeys-Dietz Syndrome” – Dr Rumyana Smilevska & Sharmila Rajendran – Rare and relevant anatomy

Spaces are free, but limited due to patient preference – please sign up with the provided link. We look forward to seeing you there!

The event schedule can be viewed here: www.instagram.com/p/DR3DVCdiGsP/?utm_source=ig_web_copy_link&igsh=MzRlODBiNWFlZA==